Here Quinn is getting a bath in her bed! That does not happen every day and she loved it!
Well, we are back at Children's hospital. Virginia is amazing and had a Thursday with seizures and a Friday morning with all kinds of breathing issues with Quinn. In fact when I talked to Virginia, I quickly found out we needed to go to Children's to get this breathing stuff figured out.
So Quinn and I went to Omaha, and she even started singing on the way, so I could tell the tylenol she got was working. The hospital is packed full of kids, the ER was packed, yet we felt like the care we got was wonderful and the focus was on us. Again tests came back looking ok. Not Mono, X-rays turned out ok. Now we are waiting for ENT folks and thinking maybe tonsils but still not sure. The hospitalist knows Quinn from her other times here, and Dr. Stoolman is amazing. She is down to earth and really listens and says we are not going home until we get some things figured out. That makes me feel good.
Quinn's actions are back and forth, sometimes feeling so good and I feel foolish being here, hoping that they don't send us home thinking I'm fibbing, then when that tickle happens, she starts coughing and throwing up and her breathing gets all out of wack. Her white count is high, but not Mono high. She is getting breathing treatments and antiobiotics, not the bad kind she is allergic to. We have got some fun toys from the toy room that we are playing with. Some bells, and a projector that plays music and projects pictures on the ceiling.
We did go see the Neurologist Thursday and it actually went well. He said she does have a lot of brain damage, as we already know, but that she is improving and using the parts of the brain that is working. We did some tests on levels of the medication, and are waiting on results. We also did lots of blood work here and we are waiting for those results as well. I tell you her body looks like a battle field, both blood draws they had to do a few pokes and now she has some big black and blue marks. That really is the least of our concerns right now though.
Well we just had a bath, she smells so good, she looks adorable with her pigtails and ribbons, and is resting pretty well, she needs a good nap, she did not sleep very well last night. Well, I am signing off and going to spend some time with Quinn.
Prayers are welcome and I know they work so thanks in advance.
Susan
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