March 3rd, 2011
5:45ish - sleeping, but about to be woke up for the day. I think it’s pretty adorable how she is almost kissing her bear.
6:45ish – Going to Chrissy’s. Normally it’s not quite this early, but today I had a meeting.
7:45ish – Chrissy is helping Lupita get Quinn loaded up on the bus to go to school.
8:45ish – Checking in with the nursing office with Nadean and Heather.
9:45ish – Working with Miss Lori (speech therapist)
10:45ish – Working on the Computer with Mr. Matt
11:45ish – Finishing up at school for the day with her Vision Specialist, Miss Wendy. (Quinn does not always have so many folks working with her every day, this was just today, and wow was she busy!)
12:45ish – Going Potty at Chrissy’s house, can you tell how tired she is after working so hard at school.
1:45ish – Nap time
2:45ish – going to therapy with Chrissy. This picture made me giggle as I was looking through her day of pictures! Chrissy did say they were stopped at a stop light.
3:45ish – At therapy with our Occupational Therapist, Diane – we had another miracle moment!
Wow, what a day! While we were at therapy, Diane and Quinn were lacing up the outside of a cow. Quinn was board of the puzzle they were working on earlier, but as soon as Diane got out the cow, Quinn started grinning and said, COW. Then another little miracle happened. Diane was having Quinn open her hand and close her hand over the string to pull it through the holes, and she did it! Usually, when we do work on hand skills, like pulling on string, we help her open her hand, and work with our hands over hers. Her hands have always been very tight, and hard for her to control, but that is starting to change. When Diane said open your hand, Quinn opened her finger and thumb all by herself, and when Diane said to close it over the string she did it by herself too, then they pulled it through, and this happened 4 times in a row! Yeah, the somewhat simple act so many of us take for granted, was a miracle moment for us, with Quinn repeatedly opening and closing her fingers over this bright florescent orange string. Ohhhh, what a great session!
4:45ish – hung out with Grandma Martha, and loving the nice weather.
5:45ish - Getting some love from Blue. Our dog loves Quinn! Quinn loves Blue sometimes! Also eating fruit and granola.
6:45ish – keeping it real, I’m suctioning out Quinn’s trach. When she has a cold or just a common day, we have to suction out the snot in her chest. She does a great job of coughing it out many times, but after a long day she needs a little help.
7:45ish - Meds then time with Dad.
8:45ish – back in bed, with all her equipment, but even with all her stuff, she is just a wonderful sweet, loving, hard working, amazing 4 year old. I can’t say enough how lucky I am to have her in my life!
There are so many other things Quinn does that we can not fit into every day, so I think I’m going to have to do a day in Quinn’s life a few more times over the next few months! Thanks to Chrissy and Nadean for helping with the pictures. What a great day!
Blessings,
Susan
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