Sunday, April 19, 2015

Updated
Quinn's Dance Class is once again in full swing!
This time Isaiah and Denali are helping as buddies!
I love it that they want to help out.
I believe that they are going to understand and accept everyone for who they are rather then what they might appear to be, because of all their experiences.
I'm so grateful for that!



Then Disney stuff has been continuing!  We have our schedule mapped out, but will follow it very loosely.

With the end of the year coming up, we get crazy busy as kids and as a teacher.  With hundreds of report card grades and getting everything done, we are trying to get things done now.

We made some special tags up to give to our teachers and support staff to remind them how grateful we are for them.  The kids did 90% of the work!  YEAH!

 As I keep trying to educate and share our story, I've been going through things in the past to figure out what works for Quinn.  So I'm going to share a few things I usually have to think about that I don't have to think about this time when it comes to our vacation.

Usually even simple things, like if we go out to dinner, I have to think about things, are there stairs?  How close are the tables together, can Quinn get through.  Quinn's chair is bigger then an average chair, so can we get her to fit and face the table?  We usually have to educate the waiter or waitress, yes she will have a menu, yes she will have water, yes she will usually eat something.  We love to educate for the most part and doing it in a loving caring way, might help broaden folks opinions of others in a good way.

For this trip with Make a Wish, I don't have to call ahead of time to check on if things fit, or what about this or that.  We have signed up for a few meals at Disney and there is a spot to check if we have a wheelchair, so I know it will be ready for us.   I've got apps that tell us what works with wheelchairs, or if we will need to get Quinn out for a certain ride or activity.  It tells us everything we need.  We will also have a meeting  at our villa that I will go to that will give us tips and suggestions for our exciting week.

As we pack, I will have to add pictures, we are going to be taking an extra big suitcase just for Quinn's extra stuff.  So I've been starting to get things out and ready and create lots of lists.  We can't run to the store to pick up extra track barrels, or suction tubes, or cords for feeding machines or suction machines.  So lists are what I live by.  Luckily I'm a list person to begin with, so it works out. Starting weeks before we leave gives me the peace of mind that I will get everything together without being a basket case when it gets closer.

I will continue to make lists, and work with extra supplies, and educate others.  I will continue to share out story and work with walkers and back up wheelchairs, braces, and briefs.  I will continue to advocate, and educate.  Why?  Because God blessed me with three amazing kids, and a stable family, a wonderful life.  He blessed us by having us live in a country where we are supported by a government and insurance systems that is not ideal, but so much better then most other countries.  We are blessed with kids that are willing to educate about our own family and share in each others adventures and most of all love each other unconditionally.

I also wanted to add, that Quinn in some ways is so much easier to take care of then my other two.  They will be the first to say she is grounded less then they are.  She has the best laugh ever, and she is the hardest  worker I know.  She is amazing and I'm so thankful to be around her.  She makes all of us better for knowing her.

Then there are times like our upcoming trip where we get to enjoy the love others have for families like ours.  We are staying at Give Kids the World, where we will be able to meet many other wish families, and volunteers who are there to care for us.  It's a place where we will be accepted and pampered.  We are very excited!

Here are a few pictures we have been looking at to see where we will be staying.





Give Kids the World Village looks pretty magical!  We are getting more and more excited!

No comments: