9-24-10

Here is Quinn with one of the respiratory folks, they have been amazing as well as her nurses! They work so hard to keep Quinn improving!

Well, it's Friday and we are still at Children's hospital. The word is starting to float around that we might go home today, but I'm guessing it will be tomorrow. Quinn is feeling better, as I find myself searching the internet more often, rather then laying in bed with her trying to comfort her. My Better U team of girls (http://www.1011now.com/betteru) sent Quinn a little glittery sea horse, thanks Ruth for bring it, and Quinn has been loving it. Her baby doll has been found at the bottom of the bed several times, but she is clutching her sparkly seahorse now.

I'm still thankful for all the doctors checking in on her, they have a few different opinions on what is best for her, and that does not surprise me, as she is a case all her own, and does not fall into any certain group where they can say, oh do this, then this, then this. Quinn makes them all work much harder to figure out what to do. She is breathing good. In fact she was off the breathing machine for an hour last night and did pretty good. She took a full feed this morning, and has been smiling at a few of the nurses. We are going to do antibiotics too, or that is the plan for now. We are still struggling with her secretions (snot), she just has so much of it, which gets in the way of breathing, we are sucking it out when she coughs, but there is just so much, and she is loving her pain meds, and when it's about due again, she is pretty tight and miserable. So we are improving, but not quite there yet. She is taking some good naps and that gives me time to do some stretches, and take care of myself.

One of the things I have been doing is searching the internet for different foundations to help us build Quinn's House. We have an amazing architect and a sweet friend heading up the project, and they have lots of folks on board to "pay it forward" by donate time and help with lots of different parts of the house. Our church is excited about being part of it too, as well as a few other groups. With all that help, we have been talking to the bank about down payments and construction loans, as our savings went to medical bills in the past, so I've been searching out organizations that might be willing to donate to our wonderful little Miracle Quinn, but I'm not having much luck on that front. So, if any of you have any ideas on fund raising or foundations or anything please let me know. I'm not great at asking for help, but we have such an amazing group of folks working so hard on this, that the least I can do is try to help out as well! We are hoping to have a mobile lift, track system, chair lift for the house stairs and car, and a few other things just to help Quinn be successful in her house. We don't expect it to all get done at once, but most things need to happen sooner then later, with Quinn growing and growing. So if anything pray that miracles keep happening, because what we have in place already is amazing, and humbling, but we invite prayers and support of any kind. I am so thankful to have her in our life, and remind us all, not to take our health for granted, and love each other up, as we all have our own obstacles to overcome, so just love each other up! Blessings!