9-25-10

Here is Quinn and our respirtory therapist, working on her percussion, which is basically a heavy duty massager, to help keep her ribcage loose and relaxed, as well as help break up the mucas in her chest to get it out. We will be doing this at home now too. Three times a day or so for 10 minutes.
Look at how much better she is looking! Smiling and so content! I love it!
She finally got some much needed daddy time, and loved it as much as ever! She sang and sang with dad!
Looks like we are going home today! Quinn had a great night! She slept good, she is doing great coughing up that yucky snot. She is smiling, and when dad stopped by she sang and sang with him.

We are bringing lots of stuff home with us! We have new masks for Quinn's nebulizer, we use that to help her keep her throat moist and cough out snot, when we need to. We have her new CPAP mask and machine to help her sleep better. We have her new percussion wand, to help her stay loose, it's what the respiratory therapist is using in the picture above. Then we still have her suction machine, again to help with the snot, and all kinds of meds, chairs, pillows, shoes, braces, I tell you what, we work hard to keep things basic and calm, rather then hospital looking! Even with all the stuff, she is simply a little girl wanting to enjoy her life, and thrive and grow. that is what we want, so we are thankful for the stuff, to help her out when she needs it.

Well, over the next two weeks we are going to finish packing and get moved over into our apartment. We are going to get papers signed this weekend. It's not the perfect apartment, as it has way to much carpet, so Quinn can only use her walker in the kitchen, which is small, but at the same time, the apartment is small, and that means less cleaning, and I will be able to work in the living room and be right next to the bedroom for Quinn if she is sleeping in the bedroom, instead of her being upstairs and me downstairs, which was not ideal at all. So that will be a big plus! Basically I guess with anything, there is the good and not so good with anything! We don't have a garage, which I'm not looking forward to, as trudging Quinn around in the cold and ice is not fun, but again, it's only for 8 or 9 months, then we will have a magical "Quinn's House" if all goes well! :)

So Quinn still has a bit of mending up to do, but comparing now to when we came in last Monday, she is doing great, and we are looking forward to her continuing to improve and get back to her usual days of school, therapy, Chrissy time, and time with us at home. Oh, Chrissy (Quinn's super awesome caregiver) beware, we are going to have to pack a suitcase or something to carry her percussion wand, suction machine, sleep machine for naps, her chair, and regular stuff. So it's going to look like Quinn is moving in, hope you can find some room for all her stuff! She is turning into a little diva, needing all her special loot!