Here are a couple shots of Quinn where you can see the trach better. It will hardly ever be open. During the day it will have a little valve that helps her airway so she can talk, or a "nose" that helps keep her throat moist. They are not her best pictures, but are good at showing our newest addition.
She is just as lovable as ever! In fact lots of nurses and doctors are falling in love with her, as she is pretty amazing!
Well, we are now 6 days out of surgery. Today was the best of times and the worst of times, ok, so maybe it was not that dramatic, but it was her worst morning, when she started coughing and did not stop for over an hour, and through her tears, she kept coughing. While you would never believe that this afternoon, as she was great, smiling, and resting and relaxing so nicely. That will change soon, as Chrissy and Annette get to do her first trach change, not that they will hurt her, but it's still scary for her to understand what is going on. John and I do our change on Saturday, and it looks like we will be going home Monday, to be met with Home Health to work on all the new machines. Then we have a few days with Home Health, doctor visits, and hopefully finding a great calm pattern that can continue for a long time. We will then see if we are ready to start school, or see if we need a little more time to heal up, we will see what the doctors and Quinn say. Sometimes not having a crystal ball is a very good thing. I am learning how to be thankful for every day.
Blessings!
Susan
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