11-5-10

Here is her Passy-Muir Speaking Valve, the little purple thing on her trach, and she has been having fun with it. Smiles all day, or at least 90% of the day. She thought it was pretty cool to have her voice again, but it did freak her out with her breathing just a bit. It also made her start drooling, because she has not figured out she can swallow with it on. Well, after singing for a bit, the most fun she is having with it is: taking a really big breath, and blowing it off so it flies across the room, and mom has to go get it. This has been going on again and again. It is normal for kids to have to get use to it, and it's normal that they don't love it right away, so she is doing great wearing it for a good 10 to 15 minutes right away, and then she sucks in a nice deep breath, and the passy goes flying! Hey it's making for a pretty exciting afternoon, and that being a good excitement, nothing to crazy, just a fun afternoon of learning.


Well, is it to early to be thinking of halloween costumes for next year? We already have a great idea, this picture is the clue to what it's going to be. A sweet as can be little character, and she is precious and amazing, just like Quinn. Annette and Chrissy came to the hospital last night to do their first trach change, and it went great. In fact she is still coughing a lot, but she has not needed any pain meds yet today, so we are starting off on a great note!